Different Interests

April 24th, 2014 by Ruth

Ok so this is not really an accomplishment or a goal we are working on but recently N has been really interested in those Frozen songs from the movie (but not very interested in the story itself). So when he was in bed last night, I typed up the song lyrics in a bigger font for him, put the songs in page protector sheets (easier to flip through) and assembled them in a 3 ring paper folder thing and wrote “FROZEN SONGS” on the front cover. Then quietly slid it under his bedroom door.

This morning Wayne got him up from bed and found him already awake, flipping though the page lyrics and belting out “Let It Go” in his most diva-like impression. LOL

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On a related note, we are starting to see his interests branch out a bit more. Yes he is still very interested with all things letters and numbers, but his obsessive/repetitive play is waning and getting more diverse and seemingly more (dare I say it) neurotypical. It’s hard not to desperately grab for any glimmer of hope, but it is exciting to see. And for him to join in with everyone else in this Frozen interest makes me wonder if I will experience other things (as a typical mom and son) that everyone experiences. I am well aware that I can get carried away with this and I have to check myself on my motivations and where I place my security and hope.

OT: Putting The Pieces Together

April 15th, 2014 by Ruth

 

The highest priority I had for services was occupational therapy. It was really hard to get. We ended up going through our insurance company via UCD referral (our regional center and school district were closed doors in this area). N has only gone for less than 2 months, and already I am seeing improvements, which is quite astonishing. I’m pretty sure it is partially his age, as I’m quite sure we would not get the same results if we started a year ago. Something magical about age 4 for him, some things are just *clicking*.

OT - swing

Our OT is kind and soft spoken and a calming presence for N. And for me. For the first time, I am able to talk to a professional about sensory issues, and not only be heard and understood, but given very specific and useful feedback on my many questions and concerns.

OT - roller skates

Initially N was freaked out by the sessions and for the first week or so of starting OT, he was SUPER sensitive to EVERYTHING. I figured it was his body system adjusting to it all. After awhile, things simmered back down and I am occasionally surprised at what he is willing to try out (see the skates above?!?). We have a sensory diet we do at home, which helps reinforce things. And the OT helps brainstorm with me on how to problem solve certain scenarios/situations. I cannot express just how much relief it has been to talk to her and not feel like a weirdo or a paranoid mom (as I’m sure I come across to others who don’t really “get” the sensory stuff, or autism in general).

OT

 

She also helped me understand something that happened recently. N caught a cold, and a couple nights ago he woke up screaming.  It’s unlike him to do that unless he’s really ill, so we brought him downstairs for some water and Tylenol. He sounded horrible so I brought out the nebulizer and had Wayne listen to his lungs with his stethoscope to rule out pneumonia/asthma. We eventually got him to calm down with a little prayer, some counting, a bit of medicine and a few sips of water, and tucked him back into bed.

The next morning he drew this:

expressing his feelings the morning after =/

I was initially disturbed by this drawing and wondered what it meant, because this is very different from all his usual drawings. And he never does an unhappy face either. Wayne guessed it was some complex way of him expressing how he felt last night. I brought it to the OT this morning, and she told me that he was probably drawing how he felt that night – with him feeling sick, his senses making him feel all disjointed, and the stairs… he’s got a lot of fears about leaving his room while it’s dark, and going downstairs was really upsetting for him when he probably wanted to be in his room. We troubleshooted ideas about a flashlight for him, and other scenarios for the future.

My child is complex, but with his OT, I feel like I am getting better at learning about my child every week. I am so desperate to know him and connect with him, and every little piece helps.

 

 

ABA Workshop

April 12th, 2014 by Ruth

Sitting here at an ABA training workshop for parents. I have flashbacks of some of my undergrad studies, yet it feels so strange because this is not from a textbook, this is my real life, right now. It’s so hard not to worry about every little thing.

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I have to remember not to put all my security and hope on a program or a method or even an expectation of a desired outcome. This process has made me hypersensitive about guarding my heart in regards to trusting God. I’ve never had such intensive daily heart-pruning as God is doing right now with me. Everything is in His hands.

Portraits, by N

April 4th, 2014 by Ruth

Of himself:

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Of myself:

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